Rare Disease Day is an observance held on the last day of February to raise awareness for rare diseases and improve access to treatment and medical representation for individuals with rare diseases and their families.
According to EURORDIS, treatment for many rare diseases is insufficient, as are the social networks to support individuals with rare diseases and their families; furthermore.
While there were already numerous days dedicated to sufferers of individual diseases (such as AIDS, cancer, etc.), there had previously not been a day for representing sufferers of rare diseases.
Source: - Youtube
